“I want the world to know Juvenile Myositis can be a devastating disease that medical science has yet to find a way to definitively cure or prevent,” says Sam.
“I also wanted those kids who have Juvenile Myositis and their families to know that there is hope despite the seemingly endless treatments and difficulties. I hope to stay one for a long time.” The song's music video shares a message that hard things make us "soldier on." Today, through her music, Sam advocates for kids with JM and their families.
She is another amazing example that it is never too early to make a mark on the world! We’re thrilled to introduce you to another young Kindness Activist (Kindivist) and a true SUPER (role) MODEL -- Ellery. Ellery is passionate about her music -- she is a classical pianist and flutist, and plays guitar -- and is an advocate for Primary Ciliary Dyskinesia (PCD), a rare disease she was born with.
View PDF Parts List These units are activated automatically by negative pressure in the barn.
For Ellery this disease and adversity were an inescapable avenue of discovery.
She discovered a passion for performance and a profound ability to speak to people in their deepest hardship.
A frictionless Styrofoam flap on a PVC continuous hinge swings down, accessing the main room to clean attic air.
Flap has adjustable counter-weight to regulate air flow.